Friday, May 02, 2014

health report for Thursday May 1, 2014

Fun and Games IIIe (Insomnia)
by me, Mary Stebbins Taitt
digitally altered Photographic composit from my own photos
click to view larger

Health report for Thursday, May 1, 2014:  My fibromyalgia seems to be slowly improving, knock on wood, with ups and downs. Also my itching seems to be improving, knock on wood, generally, with ups and downs.  Yesterday, I walked to Rolandale and back again with a stop at the store, as you know, which was a long stop.  My fibro didn’t bother me much, although I was eager to sit down when we got home, but I was able to put away the groceries first.  However, after dinner, my let hip started hurting, and was getting gradually worse, and I was considering applying Voltaren, but decided to wait.  Then I developed asthma (relatively mild—but enough to disturb my sleep for a while), and I starting feeling itchy.  I had a restless night and have been up three times.  I am up now, of course.  I am all itchy.  At 4:08, I took some Benadryl, but it hasn’t helped yet, and now (5:20, it’s been well over an hour!).  One of the previous times when I got up, my fibro was pretty bad, but that has subsided some.  My neck has really been bothering me, too (arthritis).  A couple days ago, whichever day it was that I felt dizzy (I think the day before yesterday), I took some Niacin and again yesterday. I was not too suspicious of the Niacin, since I’d been taking without a problem (that I was aware of) for so long.  I was suspicious of the shallots for the fibro pain, but here is the thing--I got this whole complex of symptoms which I certainly can’t place at the feet of the shallots, since most of them I’ve had without any shallots!  I suppose the Niacin could be a problem. (?)  The shallots also could be a problem, because they are listed as a possible fibro trigger—there are many.  But would the small amount of shallots I had trigger all those symptoms?  That is, asthma, worsening arthritis, itching etc.?  Here’s the thing:  I can’t think of anything else I ate that’s different—I had a veggie omelet for breakfast with the same bran mix I’ve been having and rotten cabbage, plain dry toast and almonds with bran and cabbage for lunch and you know what I had for dinner.  (Spaghetti, salad, bran, cabbage.)  There was no grazing at VM.  I know K thinks that whatever is causing the problem may be unrelated to what I eat or consume (e.g., meds).  And it may well be, but I am suspicious of foods and meds because I know for a fact that dairy causes asthma and soy causes fibro in me, and I seem to be quite sensitive to many foods and am allergic to a number of meds.

Also, Dr. Ferarra was saying that my sudden bad rash was bilaterally symmetrical and thus internally generated and not caused by contact, but that doesn’t mean the original itching might not be caused or exacerbated by contact (detergents, etc.).  The original itching was not necessarily bilaterally symmetrical (hard to tell, since I couldn’t see I, usually) and the sudden bad rash (SBR) did not follow the same pattern as the original itching.  The SBR is fading and peeling, but it was bothering me in the night (itching).  My eyebrows and head and back and buttocks were also all itchy in the night.

If the cabbage is actually helping me, it is definitely not a protectorate against flare-ups at this point.

I do seem to be feeling, on the average, knock on wood, somewhat better than I had been except for my insomnia, which does not seem to be improving.
I had been thinking about not bothering to see that allergist, since I seemed to be gradually improving, but tonight (last night and this early morning), I do not feel improved.  I was hoping to avoid further trouble, annoyance and expense.  Once you start going to an allergist, it’s a long-term deal, most of the time.


Also, there are the almonds, which I’ve been eating a lot of.  I was worried at one point that nuts were causing a problem for me, but then I was eating them and my fibro was not worsening (but my insomnia was not improving, but it wasn’t visibly worsening either, since it was already bad.)  But they could be causing a problem.

Wednesday, April 23, 2014

The Problem with Holidays

Bumbleberry Pie

One of the problems with holidays is that not only do I gain weight on
the holiday itself, even if I only eat fruit pie and fruit, but it
makes it difficult to get back to a healthy diet--it gives me
cravings!

Thursday, March 06, 2014

Insomnia Report for March 6, 2014

INSOMNIA #140306

Thursday, March 6, 2014:  I had terrible insomnia last night.  I was very agitated and could not sleep and did not in fact have a single wink of sleep until after 4:30 AM and then had less than 4 hours.  I am very tired.  In examining factors, I am looking for things that are different from days when I slept better, and here are some possibilities:
·         Lack of Exercise:  I did not get my normal amount of exercise yesterday, as I was working on a story for my class and didn’t have time to walk.  Nor did I do my other exercises.
·         Potato chips:  If I remember right, I’ve suspected potato chips before.  They have a very high glycemic index, and sugar seems to affect my ability to sleep.  Potato chips taste so good to me.  L
·         Blueberries:  I ate more than the normal amount of blue berries at lunch yesterday.
·         Raspberry vinegar:  I put in the spring rolls I made for lunch.  I was in a hurry and not as careful as usual tipping it in.  (Got lots).  I think it may be high in sugar.
·         Excitement:  reading my story in class was exciting and somewhat stressful.  I often do not sleep well after ANY evening event, such as the opera.
·         Stress:  That business last night with Graham and the car was extremely stressful and I lay awake worrying about it when I did try to sleep again.  However, I was already having insomnia, which how I even knew he took the car—otherwise, he might have taken it without my knowledge.
What I ate yesterday:  vegetarian omelet, non-vegetarian spring rolls with carrots, cabbage, turkey, spinach, raspberry blush vinegar, a hamburger and stir fry for dinner, with scallops.  And my bran mix with Psyllium at every meal, which was oat-free and wheat free.
What I would like to do is NOT EAT potato chips for a while, and see if I sleep better, and same with blueberries and raspberry blush vinegar.  (This will not be easy or fun.)  YES, I am aware that it could be a chemical imbalance in my body that has nothing to do with food, but I have to check this out.  I should do it systematically, but that is not so easy to do with food.  I guess the thing to do would be eliminate all of the suspected foods and then, assuming I sleep better, reintroduce them one at a time. 

Wednesday, November 20, 2013

Something “Bad” ("Bad" Food)




Wednesday, November 20, 2013

                I made myself a 1/3 batch of Chocolate pudding using hemp milk instead of whole regular milk + half and half. 
                This is bad because I do not need the excess calories.  It is also bad because it may keep me awake.
                It is also bad because I wasted time I needed for other things making and eating it—but I really wanted to have some.
                The worst bad part is that chocolate tends to make me grumpy, reactive, cranky, angry, defensive and annoying and no one will love me anymore.  WAHN!

Wednesday, July 03, 2013

The Long Fall

The Long Fall
Watercolor sketch by Mary Stebbins Taitt (me)

I made a new watercolor sketch the evening of June 30, shortly after I came home from the hospital. I was thinking about my current health issues. I have now been sick almost four months. (Four months feels like an interminable time!)

The sketch also seems to be a metaphor for life (a somewhat pessimistic one, perhaps). I try to be REALISTIC, not pessimistic or overly optimistic, but realistic. The truth is, we age, we often become ill or incapacitated in various ways and then we die. Everyone we love will die. Including ourselves, of course.

I am not without hope. I do hope I will recover and have some happy productive and engaged years before I go. I am getting incrementally better, I THINK, each day. It is is difficult to tell, with the ups and downs and the pain.


Cartoon of unknown provenance
I apologize for using it without permission

The Long Fall II
by me
Click on any image to see all of them larger

Images: Watercolor sketch, in sketchbook. (The second version is inverted and hue altered.) The cartoon came from a forward, and I know nothing of its provenance, but it resonated for me, so I apologize to its author for using it without permission. Why is it that sad things are so funny and funny things so sad?

Health report: I THINK, as I said, that I am incrementally improved today over yesterday. I will know more later when I find out if I can do my exercises, prepare meals, walk at all, etc. THANK YOU ALL FOR YOUR LOVES AND LOVING SUPPORT!! 7-3-13 11:00 AM

Monday, May 20, 2013

Remediating Fibromyalgia Pain


In my late twenties, I developed terrible asthma.  I ended up in the hospital and almost died.  This continued apace, really knocking me down.  Bear with me, it does relate.  A man taking a course I was teaching named Peter Pfeiffer told me that I seemed like a person with a dairy allergy.  He suggested that I go ten days without dairy and see if I felt better.  I did--it was like a miracle.  I was a new person.

I looked at my diet and discovered I was having cheese omelets for breakfast, toasted cheese sandwiches for lunch, macaroni and cheese for dinner (etc).  I literally did not know what to eat.  Dairy was in everything I ate.

I started substituting soy milk for milk, tofu and soy cheese for cheese and I developed fibromyalgia.  Slowly.  I didn't connect it with the soy.  But eventually, it got so bad I literally couldn't walk to the end of my driveway I was in so much pain.  I did a rotation diet and discovered it was the tofu and soy.  When I eliminated that, I felt better, BUT then I developed a sensitivity to beans, peas etc, especially the dried ones.  

Meanwhile, my allergist suggested reintroducing dairy, since I hadn't had it in many years--she thought I may have outgrown the allergy.  Wrong--I immediately developed asthma AND fibromyalgia (or fibromyalgia-like symptoms.)

What this means is that I have to prepare all my own meals from scratch because everything (all prepared foods) has either dairy or soy or both.  And it was the protein in dairy and the protein in soy that created the problem.

After experiencing fibromylagia so bad I literally couldn't walk, it now is more of an inconvenience most of the time.  I totally avoid sugar and refined grains (Which turn into sugar), nuts of all kinds, dairy, soy, caffeine (I have no soda, coffee, tea, chocolate etc).  I exercise (walk, run, bike) 45 minutes a day and go to bed around 10-10:30 (good sleep is essential).  I drink only water and eat only fresh whole foods, organic if possible.  I do eat nightshades, in limited quantities.

I do eat wheat (whole grain only) and have been considering testing that as well, since I still have some residual pain that flares up toward the end of a long walk.

Isolation and Loneliness

I read that isolation and loneliness contribute to depression and that isolation and depression contribute to dementia.  In any case, isolation isn't fun.

I'm home alone all day.  Keith comes home, and then, leaves again as soon as possible.  Today, he went to Home Depot, and then R'dale to do some work.  The work does need to be done.  AND he probably doesn't want to be with me when I am miserable.  I do not blame him.  I am miserable when I'm miserable.

I am also lonely.

And no one can come visit.  And really, no one can call.  Scott called this morning to be supportive, and I was in so much pain I couldn't concentrate or make good conversation or even be a good listener. I am stuck.  Alone.

I can read Cowbird stories, theoretically, or send emails, or go on facebook, but most of the day, I was in too much pain to sit and read or type.

Friday, May 10, 2013

Jogging in Place in the Shower


Jogging in Place in the Shower

I want desperately to take a shower.  I haven’t been able to take on in a number of days because of the pain.  It’s been hot, and I’ve had to use a heating pad nearly continuously, and that causes sweatiness.

But the pain makes it hard to stand.

Some of the things that help the pain include:

  • Ø  hot water, hot baths, hot compresses
  • Ø  walking, running or leaping about, depending how bad the pain is
  • Ø  hugs and touch, massage
  • Ø  ibuprofen (takes the edge off a little)


No one is here to hug me.  I’m an hour and a half into this round of ibuprofen.

The hot water helps some.  When it doesn’t help enough, I march in place under the water.  When it still hurts too much, I jog in place.  The washing and shampooing become hurried and urgent.  Luckily, no one is here to see me. 

I wonder how far I’ve run, if I were going forward.  Three quarters of a mile?  I‘m going pretty fast and that’s about how much ground I’d cover on foot in the time it takes to wash up, shampoo, shave my legs.  Shaving my legs at a dead run is pretty tricky though, I have to slow down to easy jog for that, then quick speed up to knock the pain down.  Owy.  Well, I did it!  I'm clean!

During the high-pain phase of the flare-up, I ran around the house (upstairs only, for the most part) reorganizing things because it hurt too much to sit.  Moving rapidly around seemed to help.

Sunday, May 05, 2013

Suicide

Tulip Collaboration
with Gail Slaughter
(She took the photograph; I painted it)

This first section is copied from the New York Times and is only part of the total story there:

Suicide rates among middle-aged Americans have risen sharply in the past decade, prompting concern that a generation of baby boomers who have faced years of economic worry and easy access to prescription painkillers may be particularly vulnerable to self-inflicted harm.

More people now die of suicide than in car accidents, according to the Centers for Disease Control and Prevention, which published the findings in Friday’s issue of its Morbidity and Mortality Weekly Report. In 2010 there were 33,687 deaths from motor vehicle crashes and 38,364 suicides.

Although suicide rates are growing among both middle-aged men and women, far more men take their own lives. The suicide rate for middle-aged men was 27.3 deaths per 100,000, while for women it was 8.1 deaths per 100,000.


“It’s vastly underreported,” said Julie Phillips, an associate professor of sociology at Rutgers University who has published research on rising suicide rates. “We know we’re not counting all suicides.”


Another factor may be the widespread availability of opioid drugs like OxyContin and oxycodone, which can be particularly deadly in large doses.

*     *     *     *

I've written about suicide before.  More than once.  It may be a real option for me, later.

Last time I had this condition, I began to seriously consider suicide.  The unrelenting nearly unbearable pain, the worst pain of my life, went on and on and on.  How would I do it?  Sleeping pills, of course.  I guess.

So now, I'm reconsidering.  Thinking about suicide again.

I'm not ready to do it--I generally like being alive, except for this pain.  And, I'm afraid of the pain of dying and afraid of death itself.  I keep hoping for healing.  For some relief from the pain.  But when it's bad and I consider the options, suicide seems like one of them.

I recently threw away eleven bottles of sleeping pills.  I should have saved them.  If I do do it, I want to do a good job, not a half-assed one.  I do have more, and the others were expired.  I don't take sleeping pills any more.

*     *     *     *

Tulips, on the other hand, are one reason to stay alive.

Tuesday, April 23, 2013

Improved Fibromyalgia

Me, trying on hats at Greenfield Village 
The fibromyalgia isn't perfect, but it is MUCH improved!  YAY!

I am walking 45 minutes a day or more, doing sit-ups, other exercises and yoga stretching.

I am SLEEPING BETTER, a major factor in fibromyalgia, although still not perfectly.

What I think has made the difference is my diet:

I avoid:

  • sugar, in all forms, but particularly added sweeteners.  I do not eat much fruit.  (I do eat some, but not every day, and very small portions.)  I do eat vegetables that include fruits, such as red peppers, but again, in limited quantities. I also avoid, whenever humanly possible, artificial sweeteners.
  • refined grains (no white flour or white rice)
  • dairy
  • soy
  • legumes
  • nuts.  (I'm not sure about nut, but every time I test them, I have an insomniac night.  I hate testing, because of the often negative results.)
  • desserts--no dessert of ANY KIND
  • potatoes (and other high-glycemic foods)
  • snack foods (potato chips, corn chips, etc) (This is really a repetition, the reason I avoid them is because they have high-glycemic foods and refined grains)
I eat:
  • vegetables (except legumes)
  • fish, poultry, meat, shellfish
  • whole grains (with NO added white flour or grains)
  • occasional small portions of fruit
And I exercise daily, which helps with sleeping, and which is made easier by my improved fibromyalgia, that is, my lessened pain.

A side-benny from my fibro diet is that I have lost weight.

However, I have a recurrence of a very painful medical condition, a fissure. I am writing about it in its own blog, FISSURE.

LinkWithin

Blog Widget by LinkWithin